I’m very thankful that Neil (physical therapist) is so well read on Chiari. We talked yesterday about the uniqueness of the disorder and the scarcity of knowledgeable physicians, therapists, etc. I felt like a science project and he was like a kid in a candy store, soaking up everything I told him about every symptom,Continue Reading

First day of PT

I just realized something.I’m angry.I am…I am freaking livid.I know, I know. I’ve stated all of this wonderful, soulful..“Oh, I’m just so thankful it’s something treatable”We both know that’s the way I’m supposed to feel.But today..let me tell you how I really feel. I’m sick of trying to fit into the shell of what aContinue Reading

Feb. 19, 2013Made it through the weekend just fine. I’m a little more active every day. I have trouble pacing myself, so what happens is that I’m doing fine cooking, cleaning or what ever…not looking at the time and then suddenly my head and the rest of my body turn on me…and that’s it, I’mContinue Reading

Feb. 15, 2013 I’ve spent the day doing nothing. I haven’t even done the dishes. Bob is taking me to dinner tonight at 135 Prime, my favorite restaurant in Waco. I was so tired from yesterday that I didn’t want to push it and be too tired for our dinner out. So, I’ve watched EatContinue Reading

Feb. 14, 2013 I’m frustrated. I have so much I want to do…but can’t. I know I’m supposed to rest…when I rest then I feel better so I want to do something. Then I do something…or over do something and have to go to bed for the rest of the day. This resting phase isContinue Reading

Feb. 13, 2013 Today is 3 weeks since surgery. I can’t believe how far I’ve come in this short time. I still see such great improvement in symptoms. I’ve yet to have a totally narcotic free day. I thought I would make it yesterday, then I was blasted with a horrible headache late afternoon….then someContinue Reading

Feb. 11, 2013 First day home alone…it’s 9:15 and I need a nap. I have only refilled my coffee cup and made a few phone calls. The phone calls just take it out of me…total energy zappers. Yesterday was a good day. I was relatively pain free until late afternoon when I got hit withContinue Reading

Written 2 hours ago by Michele Robinson (Duffey) Mom left yesterday morning and made it safely to Mississippi. I’m a little anxious about being home alone next week, but know I will be fine. Pacing myself seems to be the key..that and limiting computer, texting and television time. That’s so difficult. Everyone says..”Just rest”…Easy toContinue Reading

Journal Print this Page Print Entire Journal Update Journal Notifications Total Entries: 49 Sort by: ←Prev << 1 2 3 4 5 6 >> Next→ Written 2 hours ago by Michele Robinson (Duffey) Mom left yesterday morning and made it safely to Mississippi. I’m a little anxious about being home alone next week, but knowContinue Reading

My visit to see Dr. Horner went well. He was impressed with my healing so well for being only 2 weeks post-op. After careful examination, he is confident that I have an enlarged lymph node (lymphadenitis) due to some stray bacteria from my incision. He put me on some strong antibiotics (due to being hospitalized…thereContinue Reading

Musings about Love from An Essay of Transformation

The more I learn about love, about simply loving- the more I am endeared to it, permeated by it and transformed into a vessel of it.  Love mystifies me. Love is a noun, a verb, an adjective, an adverb, an exclamation, a question, a name, a sin, a choice, an antonym for hate, it is…

The Camino de Santiago…and Why I have to go.

  I am three months into preparation to walk the Camino de Santiago pilgrimage  (aka The Way of St. James) beginning in St. Jean Pied de Port, France and ending at Santiago de Compostela, Spain. I still have several months of preparations to make…but am now, today, making my intention public. Four years ago, my…

An Essay of Transformation

Sadness envelopes me like a shroud. Spindly, grisly fingers of despair clutch my throat, the heaviness of grief slowly crushing my chest as rise and fall of respirations slows to a lethal pace.  Remaining bubbles of life-giving oxygen escape my body.  Numb with death, a single tear slips down my cheek, the only evidence life…

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