Written 1 hour ago by Michele Robinson (Duffey) To catch you up to speed…since I am copying and pasting much of this from my CaringBridge–I’ve had 3 Chiari headaches this week. You Chiarians know what this is without description…and these are my first ones since surgery. It has to be related to PT, that’s myContinue Reading

ShareTweetTweet Written Mar 4, 2013 7:11pm by Michele Robinson (Duffey) -moved from CaringBridge            PT was so bad today that I’ve literally been on thesaurus.com looking up words to use to describe my physical therapist. Maybe I should call him, “The physical therapist formerly known as Neil” because I really want to call him aContinue Reading

I’m very thankful that Neil (physical therapist) is so well read on Chiari. We talked yesterday about the uniqueness of the disorder and the scarcity of knowledgeable physicians, therapists, etc. I felt like a science project and he was like a kid in a candy store, soaking up everything I told him about every symptom,Continue Reading

First day of PT

I just realized something.I’m angry.I am…I am freaking livid.I know, I know. I’ve stated all of this wonderful, soulful..“Oh, I’m just so thankful it’s something treatable”We both know that’s the way I’m supposed to feel.But today..let me tell you how I really feel. I’m sick of trying to fit into the shell of what aContinue Reading

Feb. 19, 2013Made it through the weekend just fine. I’m a little more active every day. I have trouble pacing myself, so what happens is that I’m doing fine cooking, cleaning or what ever…not looking at the time and then suddenly my head and the rest of my body turn on me…and that’s it, I’mContinue Reading

Feb. 15, 2013 I’ve spent the day doing nothing. I haven’t even done the dishes. Bob is taking me to dinner tonight at 135 Prime, my favorite restaurant in Waco. I was so tired from yesterday that I didn’t want to push it and be too tired for our dinner out. So, I’ve watched EatContinue Reading

Feb. 14, 2013 I’m frustrated. I have so much I want to do…but can’t. I know I’m supposed to rest…when I rest then I feel better so I want to do something. Then I do something…or over do something and have to go to bed for the rest of the day. This resting phase isContinue Reading

Feb. 13, 2013 Today is 3 weeks since surgery. I can’t believe how far I’ve come in this short time. I still see such great improvement in symptoms. I’ve yet to have a totally narcotic free day. I thought I would make it yesterday, then I was blasted with a horrible headache late afternoon….then someContinue Reading

Feb. 11, 2013 First day home alone…it’s 9:15 and I need a nap. I have only refilled my coffee cup and made a few phone calls. The phone calls just take it out of me…total energy zappers. Yesterday was a good day. I was relatively pain free until late afternoon when I got hit withContinue Reading

Written 2 hours ago by Michele Robinson (Duffey) Mom left yesterday morning and made it safely to Mississippi. I’m a little anxious about being home alone next week, but know I will be fine. Pacing myself seems to be the key..that and limiting computer, texting and television time. That’s so difficult. Everyone says..”Just rest”…Easy toContinue Reading

It Shouldn’t Have Happened To Her

It shouldn’t have happened to her or them or him or even— to me.  My eyes open to the gift of life each morning with hope and expectation.  The hope of a good day at work and the automatic expectation that the day will result in a return trip home, crawling into bed and drifting…

Notes from Writing Class

Last night in class, our instructor had us write letters to ourselves from our persistence and from our inspiration. Great writing prompts. We had three minutes to write each one.  I thought I would share just for fun.  Maybe you need encouragement to press on towards a goal.  Write a quick letter to yourself! The…

Musings about Love from An Essay of Transformation

The more I learn about love, about simply loving- the more I am endeared to it, permeated by it and transformed into a vessel of it.  Love mystifies me. Love is a noun, a verb, an adjective, an adverb, an exclamation, a question, a name, a sin, a choice, an antonym for hate, it is…

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