Okay..enough for the holidays..back to work. I’m becoming consumed with Chiari..Obsessed with Chiari Awareness…Treatment really shouldn’t be THIS difficult or THIS expensive. SO on with the tale… Once upon a time there was a little girl with a big brain…No..wait…that’s not the story at all.Let’s go back a few months… I get the call..Nurse: “Ms.Continue Reading

I was recently diagnosed with Chiari Malformation Type 1. I’m not happy about it…and honestly..it stinks. I’ve been waiting for something to happen..to get real help..to find the right doctor before starting this blog. I wanted to bravely tell of my story with a happily ever after ending. Well, folks..it just ain’t gonna happen…not today..Continue Reading

Musings about Love from An Essay of Transformation

The more I learn about love, about simply loving- the more I am endeared to it, permeated by it and transformed into a vessel of it.  Love mystifies me. Love is a noun, a verb, an adjective, an adverb, an exclamation, a question, a name, a sin, a choice, an antonym for hate, it is…

The Camino de Santiago…and Why I have to go.

  I am three months into preparation to walk the Camino de Santiago pilgrimage  (aka The Way of St. James) beginning in St. Jean Pied de Port, France and ending at Santiago de Compostela, Spain. I still have several months of preparations to make…but am now, today, making my intention public. Four years ago, my…

An Essay of Transformation

Sadness envelopes me like a shroud. Spindly, grisly fingers of despair clutch my throat, the heaviness of grief slowly crushing my chest as rise and fall of respirations slows to a lethal pace.  Remaining bubbles of life-giving oxygen escape my body.  Numb with death, a single tear slips down my cheek, the only evidence life…

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